Monday, March 3, 2014

One Week Down - Moving into the second week

The first week after the first treatment is over.  Tiffany has she would be fine not to have to go through this again.

We had another transfusion on Friday.  She went in early for her blood test and it came back with her hemoglobin back down in the 6's (low), but with her platelet counts down to a 17 and neutrophil counts to a critical level. 

Her platelet count has been slowly dropping in this area for a while, but 17 is a new low - normal is somewhere from 150-400 - a wide range.  Tiff for the last few years has hovered around 100 +- 20 and really the reason we started looking into things 4 years ago.  The last few weeks she has dropped down to 50 and 30.  The concern is obviously bleeding. 

On Saturday, while I finished off a Christmas promise with the kids and took them skiing, Tiffany's sister was here staying with her when she started to bleed.  Tiffany was suggesting she would be just fine, but her sister said that if she didn't stop bleeding in 20 minutes, off to the hospital they would go.  A long 18 minutes later it ended up stopping.  A concern for which we have to watch.  The doctors will give a platelet transfusion at some point if it is too low, but we aren't really sure what that point is.  We thought if is dropped below 20 they would do it, but they opted not to give her any platelets on Friday, so we will just wait and see what happens.

Her  low neutrophil count makes her very susceptible to infection.  These are the white blood cells that fight for your good health.  She has to be cautious when coming in contact with people to be sure she doesn't pick up any infection.  The problem is, Tiffany likes people, and she likes going to church.  Because of what she is going through, people want to give her a hug, get close to her, and talk to her.  So at church she wears a mask, hoping that will give people a heads up that she can't get close and can't shake their hands.  It generally does the trick so she doesn't have to say, 'Hey, get away!'

So there you have it.  An update on Tiffany.  Thanks to modern medicine, the cruddy feelings she gets can be held at bay with other medicines.  And the side effects of those medicines are pushed back by other medicines.  Her cocktail of drugs seems to grow, and she laughs at it, all the while hoping that these drugs will allow her to make it through this trial, and in a few months time, be able to say 'thank you and goodbye' to them forever more.



Sunday, March 2, 2014

May We Give Thanks to Such Wonderful People

“Piglet noticed that even though he had a Very Small Heart, it could hold a rather large amount of Gratitude.”
  ~A.A. Milne in Winnie-the-Pooh

I have hummed and hawed on if I should post this.  I know of quite a few people who follow Tiffany's Journey through this blog.  It makes it easy for me to update all who want to know the latest details of how Tiffany is fairing and to share the joy of life.

The outpouring of support is awe-inspiring and humbling.  Tiffany has more than a few times, been caught off guard with the number of people who care and offer their lives, and livelihoods, to support she and me through this turbulent period.

I have chosen, very carefully, to not add names to those who help us.  Oh, there have been many times I have typed out a name, and then upon further thought, deleted it.  My fear in doing so has always been that I will leave somebody off the list, inadvertently, because of the shear number of things people have done for us.  And also because some individuals truly don't want their life-saving efforts in front of an audience.  If you think I am wrong, I am sorry.  A public place is not the place for heartfelt personal thanks.

But I would be remiss if I didn't give a public shout out and thanks to the legions of individuals who have already done amazing things.  Helping with carpools, meals, pick-me-ups, offers to do laundry, cleaning, and tutoring the kids.  Offers of advice, of shoulders to cry on, and of heartfelt prayers.  To the many who have offered, and have already taken Tiffany up to Huntsman for infusions and checkups and others who have offered family home evening lessons, babysitting the younger ones, priesthood blessings, and being willing to take Sunday School lessons off her plate.  The list goes on, and without meaning to, I have already left out many of the things people have done for us.  Please forgive my finite ability to share my infinite gratitude.

It is humbling and amazing to know that this world is not what you see on the 10 o-clock news.  It is stock full of generous, selfless, serving people who would give the coat off their back if it came down to it.

Our hearts are no match to the gratitude we feel.  Thank you.


PS - If I ever decide to share a specific example on this here blog, please disregard the above.  Maybe sometimes some of the amazing stories need to be shared, just so people can know of the amazing things we see along this journey.  But, no one story is better than another.